A Need for Data
Accurate, timely data is critical to answering key questions about the workforce and driving data-informed policy decisions to improve the quality of and access to HCBS for the millions of Americans who are receiving or need these services. Additional data are needed to better understand the workforce and emerging trends, and to quantify linkages between workforce investments and quality outcomes, both for workers and individuals receiving services. Filling these gaps requires engagement from many entities, including the federal government, states, the research community, non-profits, and private sector businesses, who all have an important role to play in building this data infrastructure.
President Biden’s April 2023 executive order, Increasing Access to High-Quality Care and Supporting Caregivers, directed the Secretary of Labor (DOL) and the Secretary of Health and Human Services (HHS) to “conduct a review to identify gaps in knowledge about the home- and community-based workforce serving people with disabilities and older adults; identify and evaluate existing data sources; and identify opportunities to expand analyses, supplement data, or launch new efforts to provide important data on the home- and community-based care workforce and ensure equity for people with disabilities and older adults.”
HCBS FORWARD Workgroup
In response, HHS and DOL established the Home and Community-Based Services Federal Opportunities Regarding Workforce and Research Data (HCBS FORWARD) workgroup. Over the past year, the workgroup, led by the Office of the Assistant Secretary for Planning and Evaluation at HHS, met to identify key policy questions on the HCBS workforce to establish data priorities, analyze existing data sources on this workforce, and identify ways to fill critical gaps in knowledge.
This effort was driven by a focus on policy and data needed to support the workforce, meet the growing demand for these workers, improve access to high-quality services, and track the impacts of policy changes over time. The recommendations identified by the workgroup were informed by essential input from people with disabilities, older adults, and their families; HCBS workers, including those providing self-directed care; unions; disability, aging, and labor advocacy and provider organizations; state leaders; and researchers.
Issue brief: Improving Data on the Workforce Delivering Home and Community-Based Services
On April 25, 2024, HHS and DOL jointly released an issue brief, Improving Data on the Workforce Delivering Home and Community-Based Services, which summarizes the HCBS FORWARD workgroup’s recommendations to federal and state agencies, non-profit organizations, and research institutions to improve data infrastructure and information on the HCBS workforce.
Implementing these recommendations will bolster the data infrastructure needed to answer key questions about the HCBS workforce and drive data-informed policy decisions to improve the quality of and access to HCBS for the millions of Americans who are receiving or need these services.
Learn More
On May 21, ASPE and DOL, in collaboration with the DCW Strategies Center, hosted a webinar to share highlights and recommendations from the issue brief. The webinar also featured a discussion of the recommendations, as well as innovations from the field, by a panel of (non-federal) leaders and innovators in the field. Find the recording on our Technical Assistance page.
In the coming months, HHS and DOL will share additional resources, along with information about the ongoing work of the HCBS FORWARD workgroup here.
Related Resources
Comparing Federal Data Sources To Identify Gaps in HCBS Workforce Data
In addition to its other activities, the workgroup analyzed existing data sources on the HCBS workforce to identify knowledge gaps. This workbook comparing federal data sources includes an overview of the 17 surveys reviewed, outlining features such as sample size, collection methods, and characteristics of employers, clients, and workers. The workbook also examines key focus areas addressed by the surveys, including wages, health, and training.
In 2023, the Majority of Home Health Aides and Personal Care Aides Were Women
In honor of National Home Care and Hospice Month, the Bureau of Labor Statistics highlighted data about two of the most common occupations that provide care to people with illnesses or disabilities in a home or community-based setting — home health aides and personal care aides.
How has long-term care employment changed with an aging U.S. population?
As the population ages, the workforce that provides long-term services and support to elderly people — as well as those with disabilities and others needing assistance — has grown considerably. Traditionally, much of this care has been provided in institutional settings, such as nursing homes. However, many people prefer to age in place, both because they wish to remain in their homes and because it may be less expensive. This Spotlight on Statistics, prepared by the U.S. Bureau of Labor Statistics, compares industries that provide home and community-based services with those that provide institution-based care.